who’s who in PaCC

  • Alison Davies
    • Alison Davies
    • Member of the PaCC Steering Group

  • Alison Davies
    Alison Davies

    Member of the PaCC Steering Group

    I have 3 children, two at primary school and one at secondary. My son was diagnosed with a severe hearing loss at the age of two. I am a parent rep on the ‘CHSWG’ (Children’s Hearing Services Working Group) group of professionals who work with deaf children locally. I have recently joined the PaCC steering group, having seen first-hand the brilliant work that PaCC does, enabling parents and carers to have a voice and join in with advocating for the needs of children and their families across the city.


  • Sally Howell
    • Sally Howell
    • Member if the PaCC Steering Group

  • Sally Howell
    Sally Howell

    Member if the PaCC Steering Group

    I have am on the PaCC steering group representing one of the partner groups Brighton Pebbles.  In addition to my work for PaCC, I help to organise activities for Pebbles and I am a school governor at two schools and a trustee for both Amaze and Extratime.  I have two children with SEND aged 16 and 14, both who attend special schools.


  • Paolo
    • Paolo Boldrini
    • Parent Participation Outreach Worker

  • Paolo
    Paolo Boldrini

    Parent Participation Outreach Worker


  • fiona
    • Fiona England
    • Chair of the PaCC Steering Group

  • fiona
    Fiona England

    Chair of the PaCC Steering Group

    I am the parent of a 12 year old boy with Downs Syndrome and complex needs. He attends a mainstream secondary school in the city. As well as being the PaCC Chair I am on the Governance board for SEND review and SEND partnership board. I am also a member of T21 – a group that supports children and parents of children with Downs Syndrome.


  • Diana-Boyd
    • Diana Boyd
    • Vice Chair of the PaCC Steering Group

  • Diana-Boyd
    Diana Boyd

    Vice Chair of the PaCC Steering Group

    I have three children, two of whom have special needs. My oldest is autistic and my youngest has epilepsy and specific learning difficulties. As working as the Vice Chair for PaCC, I am treasurer of Link-Up, a school governor and a Face2Face Befriender.


  • martin
    • Martin Jones
    • Member of the PaCC Steering Group

  • martin
    Martin Jones

    Member of the PaCC Steering Group

    As a PaCC representative I have to make sure I am truly representing the views of a broad range of parents who may have children with needs or disabilities that only they can tell me about. Listening to these concerns and presenting them at the SEN partnership board has been my current challenge. Armed with personal experience in ASC, Statements and mainstream school (up to 16) and the support and information from all PaCC members I feel I can help represent the wonderful parents and carers in the city.


  • 28eead9
    • Jo Levi
    • Administration and Communications Assistant

  • 28eead9
    Jo Levi

    Administration and Communications Assistant

    I am a Parent Carer and also the PaCC Administration and Communications assistant. I have two children, a boy aged 8 and a girl aged 6. My son has autism and complex needs and currently attends a mainstream school but will soon be moving to Down’s Park school.


  • amanda-150x150
    • Amanda Mortensen
    • Member of the PaCC Steering Group

  • amanda-150x150
    Amanda Mortensen

    Member of the PaCC Steering Group

    Founder of Sweet Peas, runs Scope’s face to face befriending service and I have been involved with PaCC since its early days. I am also parent to 4 children including a 14 year old daughter with severe epilepsy and learning disabilities.


  • Marian
    • Marian Tipler
    • Member of the PaCC Steering Group

  • Marian
    Marian Tipler

    Member of the PaCC Steering Group

    I am mum to Joseph who has severe learning and physical disabilities. Apart from being a PaCC Steering Group member, I am also the fundraiser for Extratime, the Brighton charity that provides out of school and holiday play schemes for children with special needs and disabilities.


  • Pippa-Hodge
    • Pippa Hodge
    • Member of the PaCC Steering Group

  • Pippa-Hodge
    Pippa Hodge

    Member of the PaCC Steering Group

    Joining the Steering Group has given me a sense of belonging, and an opportunity to advocate and speak out for Parents & Carers, from a platform that is genuinely respected and listened to by the professionals within our local care field. Parents’ and Carers’ ideas and opinions are an essential input to sound policy making, especially in these times of financial cutbacks.


  • Helen-Arnold-Jenkins
    • Helen Arnold-Jenkins
    • Member of the PaCC Steering Group

  • Helen-Arnold-Jenkins
    Helen Arnold-Jenkins

    Member of the PaCC Steering Group

    I have been an active member of both PaCC and its Steering Group since mid-2012, representing the local Parent voice in the CAMHS / Mental Health arena. I have 2 boys, of 12 and 18, who attend / have attended mainstream school here in Brighton and Hove. My older son has ADHD and has been involved with CAMHS since he was 5. I am not shy in strongly vocalising and championing the needs of our fabulous Parents and Carers!


  • lisa_russell
    • Lisa Russell
    • Member of the PaCC Steering Group

  • lisa_russell
    Lisa Russell

    Member of the PaCC Steering Group

    I am the full time Mum and carer to my only child, a son aged 9 diagnosed with ASC at the age of 5. He attends mainstream school. I joined PaCC in Jan 2014 as the representative for mASCot, the local support group for families living with autism. The world of SEND can be a difficult one to navigate especially to a new parent carer, and but it’s the world I want to help improve. Being a PaCC member gives extra voice to this.


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