extratime provides high-quality, affordable out-of-school activities for children and young people aged 5-19 years with disabilities, in a safe, fun environment working closely with parents/carers, school staff and other professionals.
Contact: Becky Jenner
Tel: 01273 420580
mASCot is for families who have children with an Autistic Spectrum Condition and enables families to connect and meet others in the same situation as themselves. It is run by parents from Brighton and Hove who we all use the same schools and services.
Contact: Sam Bayley
Tel: 01273 414609
Barnardos Link Plus
Brighton & Hove Link Plus is a Short Breaks Service that recruit, train and support foster carers to provide planned overnight and/or day care to disabled young people aged 0-18 years. The Service promotes good quality care and inclusive activities for young people, supporting families of disabled young people by enabling parents to take a regular break from their caring responsibilities.
Contact: Lisa Giles
Tel: 01273 295179
Children's Hearing Services Working Group
This locally based multi-agency group, includes parent representatives, working together to maintain and improve services for deaf children and their families. They aim to look at current provision for deaf children in health, education and social care, and to develop the range of services used to make them more effective and family friendly. Currently represented in the group are:- parents, new-born screening services, audiology, paediatrician, health visitor, sensory needs team, speech and language therapy, National Deaf Children’s Society, family support worker, and the community audiology service.
Contact: Virginia Harvey, Specialist speech and language therapist (Deafness) – Current Chair
T21 Brighton & Hove offers friendship & support for children & young people with Trisomy 21/Down Syndrome and their families. We run monthly preschool meet ups, info sessions, social & sporting activities. Our private Facebook group for parents/carers and adults with T21 is our virtual HQ for sharing events, ideas and information. We look forward to meeting you!
Contact: Pippa Hodge
Tel: 07930 418298
Facebook: T21 Brighton & Hove
A Seat At The Table
A group of black and brown women, who advocate, lobby and provide support, advice and aim to improve knowledge and acceptance of SEN, help embrace racial identity and are passionate about equality and inclusion. Through our lived experiences and training, we are looking to raise awareness of SEN/ASC/ADHD within our BME communities, improve early intervention and therefore more positive for outcomes for our young people and aim to inspire change.
Contact: Liz Soper
A parent and toddler group for children with special needs and their parent carers.
Tel: 07875 377961 or 01273 236366
Amaze Face 2 Face
Amaze Face 2 Face is a befriending service for parents of disabled children. Face 2 Face is a peer support service offered at point of diagnosis or crisis to emotionally support parent carers for up to 6 months flexibly. There are also remote Face 2 Face groups running for autism under 8s, dads group, breakfast club (parent carers of all SEN needs any age) that run bi-weekly.
Contact: Louise Howe
Fresh Youth Perspectives
Fresh Youth Perspectives (FYP) is a Parental Community Forum that supports families with challenges of youth wellbeing/emotional mental health and all forms of social exclusion including school/educational Exclusions. We believe in working in partnership with services to seek solutions and ensure our families voices are heard. We advocate when required and requested. We signpost. Presently we link with aspirational skilled mentoring for improved outcomes for our local Youth in the community and educational setting, in partnership with Mentivity
Contact: Caroline , Mari or Alicja