T21 Brighton & Hove offers friendship & support for children & young people with Trisomy 21/Down Syndrome and their families. We run monthly preschool meet ups, info sessions, social & sporting activities. Our private Facebook group for parents/carers and adults with T21 is our virtual HQ for sharing events, ideas and information. We look forward to meeting you!
Contact: Pippa Hodge
Amaze Face 2 Face
Amaze Face 2 Face is a befriending service for parents of disabled children. Face 2 Face is a peer support service offered at point of diagnosis or crisis to emotionally support parent carers for up to 6 months flexibly. There are also remote Face 2 Face groups running for autism under 8s, dads group, breakfast club (parent carers of all SEN needs any age) that run bi-weekly.
Contact: Louise Howe
fresh youth perspectives
Fresh Youth Perspectives (FYP) is a Parental Community Forum that supports families with challenges of youth wellbeing/emotional mental health and all forms of social exclusion including school/educational Exclusions. We believe in working in partnership with services to seek solutions and ensure our families voices are heard. We advocate when required and requested. We signpost. Presently we link with aspirational skilled mentoring for improved outcomes for our local Youth in the community and educational setting, in partnership with Mentivity
Contact: Caroline, Mari or Alicja
the dads group
The Dads Group was set up 11 years ago in the hope of bringing fathers of children with additional needs and disabilities together, to meet and talk about issues that surround their family’s lives. Most importantly, to engage with each other through general conversation and shared laughter with other dads who just get the tough situation that life has dealt to them and their families.
The group holds a physical meeting on the last Thursday of every month at The Stoneham Pub . Hove. Our lives can be hard, stressful and mentally draining at times, but there are other fathers in similar circumstances, so it can really help to get together and share experiences.
If you feel like this group could help you or would like to get to know other dads who understand what it’s like, then come along or contact Darren for more information.
Contact: Darren Walker
Children’s Hearing Services Working Group
This locally based multi-agency group, includes parent representatives, working together to maintain and improve services for deaf children and their families. They aim to look at current provision for deaf children in health, education and social care, and to develop the range of services used to make them more effective and family friendly. Currently represented in the group are:- parents, new-born screening services, audiology, paediatrician, sensory needs team, speech and language therapy, National Deaf Children’s Society, and the community audiology service.
Contact: Sul Regan Sensory Needs Team (Deafness) – Current Chair