our reports

So far PaCC has been responsible for influential city-wide consultations with parent carers on various matters.

how we've helped

Our consultations with parent carers have been on therapy provision, the future of special education needs, the health care provided by hospital & community services, mental health & well-being and home to school transport.

Their findings have led to more money being targeted into direct therapy provision and to parental involvement in the new SEN partnership board which is working on the city’s SEN plan for the next three years.

Significant changes have been made at the Children’s Hospital regarding car parking and the introduction of the new Healthcare Passport for children with additional needs.

Read PaCC’s reports, consultations and notes from follow up meetings below. Some reports contain annexes, to receive them please contact us via email.

health & social care

Working with the local Clinical Commissioning Group (CCG) and Brighton & Hove City Council (BHCC).

PaCC and Amaze are one of Brighton & Hove charities directly contracted by the local CCG and by BHCC to engage parent carers of children with additional needs and disabilities in talking about issues, to gather their views and experiences of local health and social care services, and to hear suggestions on what might need to be improved.

One the ways PaCC engages parent carers is through consultations which are organised around specific issues. You can read PaCC’s reports and notes from follow up meetings below, for information on the background to any of the reports please email Paolo@paccbrighton.org.uk or call 01273 234862.

May 2019 – Report on Mental Health Services focusing on the experiences of families with children and young people with SEND accessing Mental Health and Wellbeing services in Brighton and Hove.
Read Report

December 2018 – Looking at the perceived gaps in provision in SEND services.
Read Report

June 2018 – Exploring the needs of parent carers who are also looking after a family member with dementia.
Read Report

December 2017 – Read about parent carers’ experience of having their needs assessed as Carers.
Read Report

April 2017 – Parent carers talk about their experience of food poverty. This report also looks at parent carers’ and their families’ ideas for healthy living, including taking part in activities.
Read Report

May 2016 – PaCC partners and Amaze expertise on what sort of services and activities they provide which directly or indirectly improve parent carers’ mental health and wellbeing.
Read Report

March 2016 – Parent carers from BAME communities talk about their experience of health and social care in Brighton and Hove.
Read Report

July 2015 – Parent carers contribute to the debate on how Primary Care can best support them. Transforming Primary Care One of the new services will be that GPs are encouraged to work more closely with other GPs through creation of ‘clusters’ where you people can access and receive support.
Read Report

January 2015 – Parent carers’ experiences of GP surgeries in the city. Parent Carers and GP surgeries in Brighton & Hove.
Read Report

June 2014 – Parent carers have their say on integrated care’s aim of a more holistic approach to people’s care needs by placing people at the centre of their own care plan.
Read Report

September 2013 – A summary of what parent carers think about pharmacists, GPs, Brighton Station Health Centre, out of hours GPs, NHS 111, emergency dental service, A&E and children’s A&E.
Read Report

March 2012 – Read parent carers’ experiences of local health care services (Seaside View, the Children’s Hospital, GPs in Brighton & Hove and CAMHS) and their recommendations for change to make the services more responsive to their needs.
Read Report

September 2018 – Parent carers views on the proposed GP online consultation service.
Read Report

March 2018 – Exploring the needs of travellers who are also parent carers.
Read Report

August 2017 – Read about parent carers’ experience of using pharmacies in relation to receiving general advice around health care and also around prescription and management of medicines.
Read Report

January 2017 – Parents carers talk about their experience of making complaints and providing feedback and how the system could be improved.
Read Report

March 2016 – Parent carers talk about how cancer services could be improved across Brighton and Hove.
Read Report

December 2015 – In 2012 Amaze and PaCC carried out a consultation on provision of health care, available in Brighton and Hove, for children with disabilities and additional needs. The full report, Talk Health, is included on this page. With this new consultation we wanted to find out about parent carers, their children and their families’ experience of being discharged from RACH, specifically on follow up and support received once they were sent home.
Read Report

April 2015 – Parent carers give their views on how they would like Health Checks to be provided across the city.
Read Report

September 2014 – Parent carers’ view on the implications and effects of providing health care services with more use of informatics.
Read Report

April 2014 – Suggestions and recommendations from the Mental Health and Wellbeing report have been collated and used to draw a city wide strategy and also taken forward by PaCC Parent Reps attending CAMHS Strategic Board.
Read Report

March 2013 – Following the success of the Talk Health report, professionals from each of the local services were invited along to update parents on the changes they had made in each of their services.
Read Report

education

Working with organisations such as Ofsted and the Local Authority to improve education policies and provision for parent carers and their children.

July 2016 – Amaze & PaCC’s response to Ofsted and CQC’s report following a joint inspection of local implementation of SEND reform.
Read Report

February 2015 – PaCC’s members respond to Brighton & Hove City Council revised Home to School Transport policy.
Read Report

January 2011 – The first follow up event to the publication of a PaCC report saw head teachers and professionals from the local authority come back to update parents on the changes implemented in SEN since the report was written.
Read Follow Up Notes

July 2010 – To see what parents said back then about SEN provision and some of the changes they would like to see.
Read Report

members survey

PaCC's Membership survey helps us to understand the issues facing our members. We use the findings from the survey to help us plan our strategy for the year.

2017/2018 – Parent & Carers Council Membership Survey
Read Report

2015 – Parent & Carers Council Membership Survey
Read Report

other consultations

PaCC occasionally take part in consultations that come outside of the usual areas that concern parent carers - for example the Fairness Commission that was set up to help make Brighton & Hove a fairer place to live and work.

July 2016 – Find out about the commission’s recommendations to make our city a fairer and more equal place to live and work.
Read Report

February 2016 – A group of parent carers talk about what ‘fairness’ means to them and their children.
Read Submission

transition

The Learning Disability Partnership Board (LDPB) is a diverse group of people and organisations representing service users and providers, specifically around the needs of people with learning difficulties in Brighton & Hove.

Parent reps from PaCC and a representative from Amaze attend the Learning Disability Partnership Board quarterly meetings. Other organisations attendign the meeting are the Carers Centre for Brighton & Hove and Speak Out.

The LDPB’s primary aim is to improve the lives of adults with learning difficulties in our community in accordance with the Valuing People priorities, but also to take on board issues around transition from Children’s Services to Adult’s.

Topics for consultation are agreed during the meetings and either suggested by the Local Authority or by the organisations attending the meetings. Findings from consultation recommendations are collated into reports and used to shape provision of services across the city.

the reports

April 2018 – Read about parent carers on Employment and Volunteering for young people with disabilities.
Read Report

January 2018 – Brighton & Hove City Council Learning Disability Accommodation Strategy 2018-2022 consultation with parent carers.
Read Report

October 2017 – Parent carers views on support with Benefits and Universal Credit.
Read Report

April 2017 – Parent carers views on Access to Sport and Physical Activity.
Read Report

January 2017 – Parent carers on moving from one type of accommodation to another.
Read Report

July 2016 – Parent carers views on the day activities available for the young people they care for.
Read Report

October 2014 – Parent carers views on housing for the young people they care for.
Read Report