who's who at PaCC

Paolo Boldrini

I work with PaCC to enable parent carers to be more involved on the way services for families with children and young people with additional needs and disabilities are commissioned and delivered across Brighton & Hove. I run coffee mornings for parent carers and organise consultations on different topics. I am not a parent carer but have extensive experience of supporting various groups to access mainstream and specialist services.

Pippa Hodge

Joining the Steering Group has given me a sense of belonging, and an opportunity to advocate and speak out for Parents & Carers, from a platform that is genuinely respected and listened to by the professionals within our local care field. Parents’ and Carers’ ideas and opinions are an essential input to sound policy making, especially in these times of financial cutbacks.

Vicky Lloyd

I’m Vicky and mum to two daughters aged 20 and 17. My youngest, Nancy, has Down Syndrome and as she has grown up we have really valued the support from the T21 community and wider SEND parent carer community. I really do believe we are stronger together. I have been a PaCC rep since 2018 and lead on the Transitions and Futures workstream of the SEND strategy. I have also worked for Barnardo’s Link Plus for over 20 years and believe in supporting families to achieve more ordinary lives through support and partnership.

Vanessa de Guzman

I am mum to two teenage children with special needs. My eldest is a wheelchair user who has Down syndrome and Autism. My younger child has ADHD and is currently out of school. My children's experiences have tapped me into the amazing special needs community living in Brighton & Hove. Being a part of PaCC has made it possible for me to advocate for voices that often go unheard and ensure that a wide range of experiences are taken into account by service managers.

Alison Davis

I have three teenaged children. My son was diagnosed with a severe hearing loss at the age of two. I am a parent rep on the ‘CHSWG’ (Children’s Hearing Services Working Group) group of professionals who work with deaf children locally. I joined the PaCC steering group having seen first-hand the brilliant work that PaCC does, enabling parents and carers to have a voice and join in with advocating for the needs of children and their families across the city.

Paul Goodwin

My aim is to give a voice to hidden children, those excluded or off rolled and also to raise awareness about Pathological Demand Avoidance or PDA.

Lucy Hughes

All three of our children have additional needs. The two oldest are Autistic and the youngest has monthly treatments at the Alexandra Children's Hospital for a chronic hormone condition. I'm a psychotherapist and worked for many years in schools and young people's services. I'm also CEO of Mankind UK, a charity supporting male survivors of childhood sexual abuse.

Diana Boyd

Sim Lewis

I am a member of the PaCC Steer Group representing dads. I'm genuinely excited about the opportunity to amplify the voices of parents and caregivers, working together to enhance the prospects and future of our children.

Chloe Willow

I am a member of the PaCC steering group representing the Amaze Face2Face befriending service. I have a background in midwifery, health visiting and youth work, also lived experience of neurodivergence in my family. I am really looking forward to contributing to PaCC, enabling parents to be heard within services in Brighton & Hove.

Anne Webster