Extra information for you

Find here lots of infomation which could be useful to you and your family.

Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).

Round Up May 2024

welcome to pacc’s May round-up This round up brings together updates about key areas of work as well as other news. As we navigate through the late spring and early summer months, we acknowledge that this time of the year brings unique challenges for many of you. The end of the academic year is approaching,[...] Read More

Short breaks update May 2024

Short Breaks There continues to be a lot of meetings and activity around short breaks at the moment. Here is a brief update on the areas covered: Short Breaks and Holiday Activities. Parent Carers and leads from Brighton & Hove City Council (BHCC) attended a meeting chaired by PaCC on 1st May. The meeting was[...] Read More

PaCC joins forces with Amaze to provide support groups

Stronger together – PaCC and Amaze join forces to provide support groups and befriending for parents of disabled children in Brighton & Hove. Amaze’s Face 2 Face service for parent carers is changing. Rebranded ‘Parent groups and befriending’, the new service is a partnership between us, Brighton & Hove Parent Carers’ Council (PaCC), East Sussex[...] Read More

PaCC Profile: Chloe Willow

introducing pacc steering group member, Chloe Name: Chloe Willow Role within PaCC: PaCC Rep, representing the Parent Groups and Befriending or PGB, previously known as Face 2 Face. Parent Carer Experience:  I have been really fortunate to access Brighton’s well-established parent-led support network, and I am really keen to contribute to this through my role[...] Read More

The PaCC Awards 2023

a celebration of people and organisations who have helped send families in 2023 The PaCC Awards celebrate and recognise those people and those organisations who went that extra mile to be there for you. Thank you to all of you who sent in a nomination – we had a record number for 2023! The awards[...] Read More

PaCC online Education Workshop

PaCC online Education Workshop – The Difficulties Children with SEND Experience with Going to School (both diagnosed and undiagnosed). Is your child experiencing difficulties going to school or has struggled in the past? Join us for a workshop with Norman Haskins (Hidden Children Officer), Dr Adele Tobias (Brighton & Hove Educational Psychology Service) and representatives[...] Read More

Important information regarding SEND Easter holiday provision

Important information regarding SEND Easter holiday provision: Read or download Brighton & Hove City Council’s launch letter for the Short Breaks and School Holidays programme, here. PaCC welcome your feedback on this new offer; and please be reassured that we continue to maintain a high level of challenge to Brighton & Hove City Council to[...] Read More

PaCC Round Up February 2024

Welcome to PaCC’s February round-up! It’s always such a difficult time of year, with January seeming to go on forever, but this year it feels even more so for parent carers and their families. PaCC continues to raise the many issues and difficulties families face with officers working in Brighton & Hove City Council and[...] Read More

Social Care Update

Social Care Update PaCC has been very busy attending social care meetings with members of staff from the council. Our focus at these meetings has been to highlight the significant concerns around availability of social care support for families, including the devastating loss of Barnardo’s and Extratime. PaCC has challenged Brighton & Hove City Council[...] Read More

PaCC Awards and Balancing Act

PaCC Awards and Amaze Balancing Act Event You are invited to a special event on Thursday 7th March, from 9.45am to 2pm at the Brighthelm Centre, North Road BN1 1YD combining two important opportunities to celebrate and reflect on how families with children and young people with SEND are supported. Annual PaCC Awards We know that[...] Read More

SEND and Alternative Provision (AP) Change Programme

SEND and Alternative Provision (AP) Change Programme You may have heard discussions about the SEND and Alternative Provision (AP) Change Programme. Read the article written by Amaze, which provides information about the Change Programme and what its aim is. Brighton & Hove are part of the South-East partnership alongside Portsmouth (who are the lead local[...] Read More

PaCC and the newly opened Family Hubs

PaCC and the newly opened Family Hubs During the past year PaCC has been facilitating opportunities for parent carers to contribute to the creation of Family Hubs across Brighton & Hove. Parent carers attending PaCC coffee mornings were able to have their say on what the hubs should offer and how. The Family Hubs are[...] Read More

Emotionally-Based School Avoidance (EBSA) Report

Emotionally-Based School Avoidance (EBSA) Report PaCC has produced a report on the parent carer experience of Emotionally-Based School Avoidance (EBSA) which is something that can significantly affects the lives of many of our families. Parent carer views were obtained during our autumn termly education workshop and through a survey sent to PaCC members.  This report[...] Read More

PaCC Awards 2023

PaCC Awards 2023 A date for your diary – the PaCC Awards ceremony: Thursday 7th March Thank you to all the parent carers who nominated someone for a PaCC award, we had a record number of nominations for 2023! We look forward to recognising the individuals and organisations who went the extra mile to support[...] Read More

PaCC Round Up October 2023

pacc round up October 2023 Welcome to PaCC’s October round up. We know this time of year is incredibly difficult for parent carers, with children returning to education (or having no education to return to) and the burnout some parent carers may be feeling from the lack of respite they received over the summer holidays.[...] Read More

Early Years in Brighton & Hove

Early Years in Brighton & Hove PaCC wanted to consult with parent carers of children aged 0-5 to find out about their early years experience and identify what their families need, and what is working well. PaCC was also interested in establishing whether there is a current need for a new Early Years parent carer[...] Read More

PaCC Calendar 2024: Call for Entries!

Would you like your child to star in the Parent and Carers’ Council (PaCC) 2024 Calendar?  The PaCC calendar is a great way to celebrate our children, bring their lives to life and bring the SEND community together. The PaCC Calendar 2024 theme is: “What helps me” – so we would love a photo and[...] Read More

PaCC Profile: Simeon

Introducing PaCC Steering Group member, Simeon Name: I’m Sim (Simeon), a Brighton & Hove native. Role within PaCC: I’ve recently become a part of the PaCC Steering Group as the representative for fathers. Parent Carer Experience: I am the proud father of two incredible teenage daughters, one of whom has autism, ADHD, and dyslexia. I[...] Read More

translate »