Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).
PaCC has written to BHCC Councillors again ahead of decision making on the future of Wellington House – the BHCC in-house provision for adults with Learning Disabilities and Autism. PaCC, alongside others who attended and or viewed Scrutiny on 4 September, remain concerned that discussions between Adult Social Care leads and Special School Heads on[...] Read More
The Children’s Hearing Services Working Group (CHSWG ) meets three times a year – once every term. PaCC Reps, Anna Davis and Alison Davis, sit alongside the panel of professionals, who represent the services that work with children who are deaf, whether that deafness is permanent or temporary, aided or unaided. Services represented are typically[...] Read More
Brighton & Hove City Council has just released some information about their SEND Reform Plan (2026–2027) What it means for children, young people and families We know that many families have told us about the challenges they face in accessing support, navigating services and getting help at the right time for their child or young[...] Read More
“It has been a privilege to work at PaCC and Amaze, and I will treasure so many moments from the past 13 years! The so many fantastic colleagues I had the fortune to work with, and the so many amazing parent carers I met at events and coffee mornings. You all have been an[...] Read More
Short Breaks Since May 2024, PaCC has been chairing Short Breaks meetings, which are also attended by parent carers and leads from Brighton & Hove City Council (BHCC). If you want to find out more about Short Breaks, we recommend the Government’s Short breaks for carers of disabled children. Departmental advice for local authorities. March[...] Read More
Brighton and Hove City Council The SEND White Paper – Every Child Achieving and Thriving Brighton and Hove City Council (BHCC) recognise that the SEND Reforms are a concerning time for families in the city. The Government have released the SEND White Paper and a consultation alongside this. Information about the proposed SEND Reforms can[...] Read More
A celebration of people and organisations who have helped SEND families in 2025 The PaCC Awards took place on Tuesday 17 March. Our annual event celebrates those professionals who go the extra mile to support children and young people with SEND in Brighton & Hove, with an awards presentation ceremony, followed by a buffet lunch.[...] Read More
During the past three years, PaCC has been delivering the Autism in Schools (AiS) and Partnerships for Inclusion of Neurodiversity in Schools (PINS) projects, in partnership with Brighton and Hove Inclusion Support Service (BHISS); click her for more information about BHISS. The AiS project was delivered over two years to the following schools: AiS year[...] Read More
PaCC has been working with senior officers at Brighton & Hove City Council to shape social care and education priorities in their workplan for 2026. We are working across the following workstreams and hope to bring you more information on these developments as the year progresses. If you are interested in getting involved or finding[...] Read More
The Adult Care Quality Commission (CQC) Social Care Inspection has rated Brighton and Hove City Council (BHCC) Adult Social Care Services as ‘requires improvement’. An improvement plan has been developed in response. Members of the People Overview & Scrutiny Committee will review and provide feedback on the draft Adult Social Care Improvement Plan at a meeting on[...] Read More
PaCC are feeding back to councillors about Brighton & Hove’s budget for 2026/27 A key area that PaCC has fed back on so far is a £40,000 cut to children’s disability services. This covers: Services for children with disabilities – management, assessment, operations and administration. Direct payments, family support services and short breaks summary of[...] Read More
In January 2026 Brighton and Hove City Council appointed Graham Davis as the Designated Social Care Officer (DSCO) in Brighton and Hove. PaCC are pleased that this recruitment has now taken place as PaCC have flagged the need for this essential strategic role for several years. The DSCO plays a crucial role in bridging social[...] Read More
In November, Becky Robinson is stepping down from her PaCC Co-Chair role, having made the difficult decision to create more time to focus on her wellbeing and family. The PaCC steering group would like to thank Becky for her dedicated contributions over the past four years, during which she has served as Vice-Chair, Chair, and Co-Chair. Many of you[...] Read More
The Sussex Parent Carer Forum Collaborative (SPCFC) is a newly-formed partnership between the three parent carer forums in Sussex: Brighton & Hove’s PaCC (Parent Carers’ Council), East Sussex Parent Carer Forum (ESPCF), and West Sussex Parent Carer Forum (WSPCF). Together, we will amplify the voices of parent carers across Sussex. We decided to do this[...] Read More
SEND Reforms White Paper: Meetings with the Secretary of State for Education, Bridget Phillipson The Department for Education has said that a White Paper on SEND, which will outline the Government’s approach to reforming the SEND system, will be published in Autumn 2025. Towards the end of the summer term 2025, Becky Robinson and Fiona England,[...] Read More
September 2025 Dear Chris Ward MP, We wanted to get in touch to make you aware of the upcoming parliamentary drop-in from the Disabled Children’s Partnership (DCP) and Let Us Learn Too. As your local SEND charity, working closely with two parent carer forums representing Brighton & Hove and East Sussex, we would like[...] Read More
Fetal Alcohol Spectrum Disorders (FASD) Awareness Day is observed annually on 9th September, symbolising the nine months of pregnancy. Brighton and Hove City Council is inviting everyone to join throughout September in raising awareness about the importance of alcohol-free pregnancies and signposting to support services. Fetal Alcohol Spectrum Disorder (FASD) refers to the range of[...] Read More
On Tuesday 3rd of June 2025, PaCC organised a PaCConnect engagement event for parent carers. The purpose of this gathering was to update the parent carer community about the work and planning that is happening in the city around education. The idea of updating the SEN community around education, followed discussions at an earlier PaCC[...] Read More