Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).
Extra school places for autistic children and young people PaCC has been working closely with the Assistant Director for Health, SEN and Disability at the local authority, in the development of approximately 100 new school places for autistic children and young people. PaCC, alongside mASCot and other partners, has highlighted for many years the lack[...] Read More
SEN Statutory Service Update We have raised some of the issues that families have experienced with the Head of the SEN Statutory Service. We are pleased to let parents know that the SEN Statutory Service has increased its capacity by appointing two new SEN casework officers and a SEN casework assistant. This will enable the[...] Read More
Coffee mornings, a way to connect For the past ten years, our coffee mornings have been a place where parent carers living in Brighton & Hove have been able to meet other parents for a cuppa and a chat. Much more than that, they can help people feel less isolated, exchange experiences and ideas about[...] Read More
PaCC’s response to the national SEND green paper consultation PaCC are very concerned by some of the SEND Green Paper proposals, which we know are shared by many parent carers. We have submitted our response to the government’s consultation, based on our experience as well as views we’ve heard from Brighton & Hove parent carers. We[...] Read More
PaCConnect on Neurodevelopmental pathway and other engagements with Brighton and Hove SEND families Last week’s PaCConnect on the Neurodevelopmental Pathway (NDP) brought together parent carers and providers from the local authority and the NHS, to explore what support and information should be available for those families who are in the process of getting an assessment[...] Read More
PaCC work with schools Young people are expected to spend a huge amount of their time at school, and for some, it’s a place they really struggle to attend. Strong communication and relationships between home and school are so important to get the best for children and young people – particularly those with special educational[...] Read More
Name: Vicky Lloyd Parent Carer experience: I am the mother of two daughters aged 19 and 17. My younger daughter has Down Syndrome and associated communication and learning needs. Until the age of 16 she was in mainstream education with an Education Health and Care Plan (EHCP) provision and support. This has not always been[...] Read More
New PaCC Reps! PaCC is very pleased to welcome four new additions to our Steering Group – Rennell, Sian, Vanessa and Victoria have just joined us and will soon represent you and your family when attending meetings with the local authority or health services. PaCC is a pan-disability forum, which means we want to[...] Read More
Hidden Children – PaCC second surgery session Inclusion in schools: what does good practice look like for learners with SEND? As Brighton & Hove City Council is about to start work on an Inclusion Charter for Brighton & Hove educational settings, we thought inclusion would be the perfect theme for the second Hidden Children termly online[...] Read More
We are finally launching a safe space for parent carers who have a disability, health condition or are neurodivergent! In our February Round-Up we mentioned that PaCC was planning to organise a new group, a safe space is for any parent carer who has a disability, health condition, or are neurodivergent – whether that’s suspected,[...] Read More
Hidden Children – PaCC 1st surgery session: children on part-time/reduced timetables Many families are facing the issue of children being put on part-time timetables, also known as reduced timetables. PaCC is aware of this and we are working with the Local Authority to make sure children don’t get penalised and that families are fully involved[...] Read More
School Attendance ‘Deep dive’ Since we last updated our members, PaCC have used feedback gathered from parent carers to respond to two Government consultations. These were linked to Government proposals around school attendance and also behaviour in school and suspension and permanent exclusion guidances. As part of the School Attendance consultation, Brighton & Hove was[...] Read More
a celebration of people and organisations who have helped SEND families in 2022 With the PaCC Awards 2022 we wanted to celebrate and recognise those people and those organisations who went that extra mile to be there for you. Thank you to all of you who sent a PaCC Champion nomination, which were shortlisted by[...] Read More
Name: Pippa Hodge Parent Carer Experience: I have three children; Amber (16), Jasmine (14) and Leo (13). Leo has Trisomy 21 (Down Syndrome) and is also autistic. He is a student at Downs View School. He has severe learning disabilities, and a severe speech & language disorder. He signs a bit, gestures a bit and uses symbol[...] Read More
Why join PaCC? PaCC’s motto is ‘stronger together’, that is, all of us standing together can make a difference for our families and all children. During the past couple of years our motto has become even more meaningful, as so many families have struggled and felt isolated. PaCC is here for you, to give you[...] Read More
Social Emotional Mental Health or SEMH At PaCC we are fully aware that many families urgently need more support and advice around children who experience Social Emotional and Mental Health (SEMH) issues. We want to make sure that those families’ experiences and needs are heard, and used in our co-production work with local health, education[...] Read More
Quality Assurance Framework and SEND Team Staff Updates For a while now, PaCC have been holding regular meetings with Rhianedd Hughes, Head of the SEN Statutory Service at the Local Authority. The SEN Team co-ordinate the assessment, production and review of education, health and care plans or EHCP. As part of the SEND Strategy with[...] Read More
New Group for Parent Carers who have a Disability or Diversity Through our participation work, parents have expressed that they would be interested in being able to get together with other parents who themselves have a disability or diversity, within their own learning or daily life. Sometimes our own personal lived experiences are helpful[...] Read More