Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).
Have you thought about joining PaCC? The forum is here to give you a voice on how services are planned and provided to you and your family. We regularly keep you updated about our work and organise focus groups and surveys when needed. We are here to make sure that your experience of SEND services[...] Read More
Mental Health and wellbeing consultation workshop: a neurodevelopmental lens on Foundations for our Future Parent carers have told us that their children and young people with neurodevelopmental conditions (NDCs) face an extra level of challenge accessing emotional wellbeing and mental health services. In recognition of this, PaCC organised a neurodevelopmental mental health consultation workshop. Over[...] Read More
PaCC Rep Profile Name: Lucy Hughes Role Within PaCC: PaCC Rep Parent Carer Experience: I am a parent carer. Our eldest child was diagnosed with autism spectrum condition (ASC) aged five. He is now ten and is in a mainstream primary school with support and will be joining a mainstream secondary. He has sensory needs and has required the[...] Read More
Planned care – your voice ‘Planned care’ means services for pre-arranged health appointments, usually following referral by a GP. As many of us know, health and medical appointments can be challenging for our children and young people. PaCC has welcomed the opportunity to feed parent carers’ experiences in to a new Sussex wide group called[...] Read More
Have you nominated your special person yet? The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many families, and we hope that, among the stress, isolation and uncertainties you were able to[...] Read More
Stronger together PaCC is here to make sure that your experience of SEND services is taken into consideration when our Chair, Vice-chair and Parent Reps attend meetings with the Local Authority, the Clinical Commissioning Group (CCG), SENCO Forums and so on. As we continue to go through challenging times, it means that more than ever, we need to support[...] Read More
PaCC Rep Profile Name: Becky Robinson Role Within PaCC: Vice-Chair Parent Carer Experience: I am the proud parent of three children who have a range of neurodiverse conditions. My oldest is 22 and he was diagnosed with combined attention deficit and hyperactivity disorder (ADHD) very recently. He is currently studying Secondary Mathematics PGCE (Postgraduate Certification in Education)[...] Read More
In response to the rollout of Covid vaccinations to a defined group of Clinically Extremely Vulnerable (CEV) 12-15 year olds, Amaze Services Director, Ros Cook, and PaCC Rep Pippa Hodge, were invited to be part of a Brighton & Hove Vaccination Task & Finish Group to oversee the planning/delivery of the vaccinations. Weekly meetings have[...] Read More
We are very excited to announce that the nominations for the PaCC Awards 2021 are now open! The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many[...] Read More
Do you receive or are you about to receive Direct Payments in relation to your child’s special educational needs and disability (SEND)? Would you like to find out more about managing Direct Payments, pre-paid cards and Supported Bank Accounts? Join us on Tuesday 28th September, from 11am to 1pm at BMECP Centre, 10A Fleet Street, Brighton BN1 4ZE, when PaCC are hosting a PaCConnect,[...] Read More
Have you thought about joining the Parent Carers Council or do you have friends who may be interested in joining PaCC ? As we continue to go through challenging times, it means that more than ever, we need to support each other. The forum is here to give you a voice on how services are[...] Read More
After months of lockdown and isolation, February and March brought some fun and relaxation to SEND families in Brighton & Hove! Some of our PaCC Partners were able to organise online activities, groups and pampering sessions for their SEND families, thanks to a grant from the Department for Education. And how welcome those were for[...] Read More
New ways of supporting children who are not able to attend school on a full-time basis PaCC are pleased to announce that Norman Haskins has recently been appointed as the Hidden Children Officer for Brighton & Hove. ‘Hidden Children’ are children and young people who are unable to attend school on a full-time basis for[...] Read More
A celebration of people and organisations who have helped in this extraordinary year What a year 2020 has been! Whilst it looks like we are slowly coming out of the worst of it (with schools reopening and lockdown relaxing), it was heartfelt and sometimes emotional to celebrate the 2020 PaCC Awards, which were postponed due[...] Read More
For the past 18 months, PaCC and Amaze have been working in partnership with Brighton and Hove City Council (BHCC), Brighton and Hove CCG (B&H CCG), schools, and other agencies and services in health and care on the development of a five year Special Educational Needs and Disability (SEND) Strategy, 2021-2026. The aim of the[...] Read More
During the past few months we have come to realise that our ‘normal’ face to face interaction had to be paused. Most of our social interaction is now happening online, and that, whilst keeping everyone safe, has brought up many issues including families becoming even more isolated. Last summer, PaCC made sure that some under-spend[...] Read More
Since December last year, one of our fantastic PaCC parents has been working with Dr Soluchi Amobi, the neurodisability lead at Seaside View, on reviewing the pathway for families who have children with physical neurodisability. The parent has a child with cerebral palsy and the first stage of this consultation has been getting feedback about[...] Read More
Brighton & Hove’s SEN Team created the following letter in response to issues raised with PaCC and Amaze around communications with parent carers during Covid-19. “The current and ongoing response to the Covid-19 situation is causing many ongoing challenges and difficulties for families in Brighton and Hove. In the SEN Team, we understand that many[...] Read More