Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).
Name: Pippa Hodge Parent Carer Experience: I have three children; Amber (16), Jasmine (14) and Leo (13). Leo has Trisomy 21 (Down Syndrome) and is also autistic. He is a student at Downs View School. He has severe learning disabilities, and a severe speech & language disorder. He signs a bit, gestures a bit and uses symbol[...] Read More
Why join PaCC? PaCC’s motto is ‘stronger together’, that is, all of us standing together can make a difference for our families and all children. During the past couple of years our motto has become even more meaningful, as so many families have struggled and felt isolated. PaCC is here for you, to give you[...] Read More
Social Emotional Mental Health or SEMH At PaCC we are fully aware that many families urgently need more support and advice around children who experience Social Emotional and Mental Health (SEMH) issues. We want to make sure that those families’ experiences and needs are heard, and used in our co-production work with local health, education[...] Read More
Quality Assurance Framework and SEND Team Staff Updates For a while now, PaCC have been holding regular meetings with Rhianedd Hughes, Head of the SEN Statutory Service at the Local Authority. The SEN Team co-ordinate the assessment, production and review of education, health and care plans or EHCP. As part of the SEND Strategy with[...] Read More
New Group for Parent Carers who have a Disability or Diversity Through our participation work, parents have expressed that they would be interested in being able to get together with other parents who themselves have a disability or diversity, within their own learning or daily life. Sometimes our own personal lived experiences are helpful[...] Read More
Social Care Provision Priorities PaCC Chair, Diana Boyd and Fiona England (who is now leading on social care for PaCC), met with Alison Mills-Clarke last month to discuss PaCC perspectives on social care provision. Alison started as Interim Head of the 0-24 Specialist Community Disability Service (SCDS) in January, replacing Carl Campbell. She has[...] Read More
Name: Ali Davis Role Within PaCC: PaCC rep Parent Carer Experience: I have three amazing children currently at secondary school or college. My 15 year old son was diagnosed as deaf just before his second birthday. He wears two ‘behind the ear’ hearing aids, and has thrived in mainstream education. He does not have an EHCP (Education[...] Read More
Have you thought about joining PaCC? The forum is here to give you a voice on how services are planned and provided to you and your family. We regularly keep you updated about our work and organise focus groups and surveys when needed. We are here to make sure that your experience of SEND services[...] Read More
Mental Health and wellbeing consultation workshop: a neurodevelopmental lens on Foundations for our Future Parent carers have told us that their children and young people with neurodevelopmental conditions (NDCs) face an extra level of challenge accessing emotional wellbeing and mental health services. In recognition of this, PaCC organised a neurodevelopmental mental health consultation workshop. Over[...] Read More
PaCC Rep Profile Name: Lucy Hughes Role Within PaCC: PaCC Rep Parent Carer Experience: I am a parent carer. Our eldest child was diagnosed with autism spectrum condition (ASC) aged five. He is now ten and is in a mainstream primary school with support and will be joining a mainstream secondary. He has sensory needs and has required the[...] Read More
Planned care – your voice ‘Planned care’ means services for pre-arranged health appointments, usually following referral by a GP. As many of us know, health and medical appointments can be challenging for our children and young people. PaCC has welcomed the opportunity to feed parent carers’ experiences in to a new Sussex wide group called[...] Read More
Have you nominated your special person yet? The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many families, and we hope that, among the stress, isolation and uncertainties you were able to[...] Read More
Stronger together PaCC is here to make sure that your experience of SEND services is taken into consideration when our Chair, Vice-chair and Parent Reps attend meetings with the Local Authority, the Clinical Commissioning Group (CCG), SENCO Forums and so on. As we continue to go through challenging times, it means that more than ever, we need to support[...] Read More
PaCC Rep Profile Name: Becky Robinson Role Within PaCC: Vice-Chair Parent Carer Experience: I am the proud parent of three children who have a range of neurodiverse conditions. My oldest is 22 and he was diagnosed with combined attention deficit and hyperactivity disorder (ADHD) very recently. He is currently studying Secondary Mathematics PGCE (Postgraduate Certification in Education)[...] Read More
In response to the rollout of Covid vaccinations to a defined group of Clinically Extremely Vulnerable (CEV) 12-15 year olds, Amaze Services Director, Ros Cook, and PaCC Rep Pippa Hodge, were invited to be part of a Brighton & Hove Vaccination Task & Finish Group to oversee the planning/delivery of the vaccinations. Weekly meetings have[...] Read More
We are very excited to announce that the nominations for the PaCC Awards 2021 are now open! The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many[...] Read More
Do you receive or are you about to receive Direct Payments in relation to your child’s special educational needs and disability (SEND)? Would you like to find out more about managing Direct Payments, pre-paid cards and Supported Bank Accounts? Join us on Tuesday 28th September, from 11am to 1pm at BMECP Centre, 10A Fleet Street, Brighton BN1 4ZE, when PaCC are hosting a PaCConnect,[...] Read More
Have you thought about joining the Parent Carers Council or do you have friends who may be interested in joining PaCC ? As we continue to go through challenging times, it means that more than ever, we need to support each other. The forum is here to give you a voice on how services are[...] Read More