Documents and information on this page are of general interest. PaCC is part of the National Network of Parent Carer Forums (NNPCF); some documents and information have been provided by one of the many parent carers forums active in England. If you need specific information and support around your child and your family’s needs please contact SENDIASS, Amaze’s advice line at [email protected] or call 01273 772289 (open Monday to Friday 9.30am to 2.30pm).
Transitions Workshop On Wednesday 10 May, PaCC organised a parent carer online SEND family education workshop around transition – across the whole age range of education. The workshop focused on what we mean by transition across different ages, what does it mean for vulnerable groups and what good practice looks like. The workshop was facilitated[...] Read More
Brighton & Hove local area SEND inspection March 2023 Updates from PaCC to the parent carer community about the local area SEND inspection: PaCC response to the outcome report Ofsted outcome final report Pre-outcome letter update PaCC want to share with you information we sent to the inspectors during the inspection. The presentation contains parent[...] Read More
PaCConnects on the Brighton & Hove Home to School Transport service A few weeks ago PaCC held two PaCConnect events to look at Home to School Transport for children with special needs attending schools and colleges in the city. A PaCConnect is a meeting to discuss issues of interest and/or concern to parent-carers. Such meetings[...] Read More
PaCC focus group on the Dynamic Support Register. Back in December we were pleased to hold a focus group on the Dynamic Support Register (DSR) to help shape the website landing page and information leaflet being produced by NHS Sussex in the coming months. Some of our families have children on the DSR, which is[...] Read More
What is a Keyworker Service? The new Keyworker service is being developed as a response to the NHS England long term plan commitment that by 2023/24 children and young people with a learning disability and or who are autistic, who are in hospital or at significant risk of admission (psychiatric admission) have a designated Keyworker.[...] Read More
PaCC Awards Nominations are Open! As in previous years, PaCC is organising our annual awards – a way to recognise some of the great work that individuals and organisations do for SEND families in Brighton and Hove. We need to hear from you! Who was that special person who did that little bit extra for[...] Read More
PaCC online SEND education workshop for parent carers: Transition across the whole age range of education. PaCC is organising an online workshop (formerly known as PaCC surgery) to share local updates and good practice around transition. The workshop will be focusing on what we mean by transition across different ages, what does it mean for vulnerable[...] Read More
Happy 2023 to everyone! We hope this year is going to be better than the previous one … At PaCC we will listen to you and make sure that your experience, views and suggestions are taken to the different Special Educational Needs and Disability (SEND) meetings that our Reps attend so that your voice is[...] Read More
Join us for the PaCConnect on Brighton & Hove Home to School Transport Service on: Wednesday 8 February 2023 This event is for parents and carers of children and young people aged 5-25 whose EHCP is held by Brighton & Hove SEND Department, whether you live in the city or not. The Parent Carer Council[...] Read More
Social Care in Brighton & Hove: updates from PaCC Parent carers continue to feedback to PaCC that whilst the quality of social care in the city is good, there are concerning issues that the amount of provision across all areas of social care is inadequate and the impact on families is very high. Families report[...] Read More
Neurodevelopmental Pathway: PaCC update PaCC continue to attend meetings around the neurodevelopmental pathway, both at a Brighton & Hove and a Sussex wide level. Recently, the Sussex wide meetings have been focusing on reducing the waiting times for autism and ADHD assessments and the prescribing of ADHD medication, including shared care agreements between GPs and[...] Read More
PaCC online surgery: How good working relationships between families and schools help to create positive outcomes for children and young people. PaCC is organising an online surgery around inclusion in schools, specifically how co-productive working, between families and schools, creates positive outcomes for a child or young person. Join PaCC’s online surgery on Wednesday[...] Read More
Helping families feel in included – our work on equality and diversity PaCC believes it is important we are representative of the diverse communities that parent-carers identify with. The PaCC Steering Group needs to be aware of key issues for parent carers across the community and be able to feed concerns back to those designing,[...] Read More
PaCC Calendar 2023 Would you like your child to star in the Parent and Carers’ Council (PaCC) 2023 Calendar? The PaCC calendar is a way to celebrate our children, and this year theme is “Celebrating our achievements”, that can be anything big or small, as for example catching the bus for the first time, receiving[...] Read More
Early Years & PaCC PaCC are making plans to host an early years parent carer participation event in the New Year. This coincides with the early years work PaCC are involved with in Brighton & Hove. At the beginning of next year, PaCC will be attending our first meeting that will be implementing an early[...] Read More
Name: Ren Barrowman Parent Carer experience: I am mum to 18-year-old twin daughters. My eldest daughter (by nine minutes!) has quadriplegic cerebral palsy which means she is a full-time wheelchair user and she finally received an ASC diagnosis in 2021. My younger daughter is profoundly deaf in one ear. Both girls have always been in[...] Read More
Home To School Transport – Update on how things are progressing I am Pippa Hodge, one of the PaCC Reps. My focus is working alongside the local authority around Home To School Transport (HTST). I have regular meetings with the HTST where we review how the service is performing, and how to keep the service[...] Read More
Extra school places for autistic children and young people PaCC has been working closely with the Assistant Director for Health, SEN and Disability at the local authority, in the development of approximately 100 new school places for autistic children and young people. PaCC, alongside mASCot and other partners, has highlighted for many years the lack[...] Read More