New Group for Parent Carers who have a Disability or Diversity Through our participation work, parents have expressed that they would be interested in being able to get together with other parents who themselves have a disability or diversity, within their own learning or daily life. Sometimes our own personal lived experiences are helpful[…]
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Vicky Baynton Williams
Social Care Provision Priorities PaCC Chair, Diana Boyd and Fiona England (who is now leading on social care for PaCC), met with Alison Mills-Clarke last month to discuss PaCC perspectives on social care provision. Alison started as Interim Head of the 0-24 Specialist Community Disability Service (SCDS) in January, replacing Carl Campbell. She has[…]
Name: Ali Davis Role Within PaCC: PaCC rep Parent Carer Experience: I have three amazing children currently at secondary school or college. My 15 year old son was diagnosed as deaf just before his second birthday. He wears two ‘behind the ear’ hearing aids, and has thrived in mainstream education. He does not have an EHCP (Education[…]
Have you thought about joining PaCC? The forum is here to give you a voice on how services are planned and provided to you and your family. We regularly keep you updated about our work and organise focus groups and surveys when needed. We are here to make sure that your experience of SEND services[…]
It’s been another busy couple of months at PaCC. In this month’s round-up, we introduce PaCC Rep and steering group member Lucy Hughes who has been representing PaCC on the Mental Health Support Teams in Schools (MHSTs) steering group. As well as our usual coffee mornings with Paolo, we hosted two additional engagement events. Our first PaCConnect since the end[…]
Mental Health and wellbeing consultation workshop: a neurodevelopmental lens on Foundations for our Future Parent carers have told us that their children and young people with neurodevelopmental conditions (NDCs) face an extra level of challenge accessing emotional wellbeing and mental health services. In recognition of this, PaCC organised a neurodevelopmental mental health consultation workshop. Over[…]
PaCC Rep Profile Name: Lucy Hughes Role Within PaCC: PaCC Rep Parent Carer Experience: I am a parent carer. Our eldest child was diagnosed with autism spectrum condition (ASC) aged five. He is now ten and is in a mainstream primary school with support and will be joining a mainstream secondary. He has sensory needs and has required the[…]
Planned care – your voice ‘Planned care’ means services for pre-arranged health appointments, usually following referral by a GP. As many of us know, health and medical appointments can be challenging for our children and young people. PaCC has welcomed the opportunity to feed parent carers’ experiences in to a new Sussex wide group called[…]
Have you nominated your special person yet? The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many families, and we hope that, among the stress, isolation and uncertainties you were able to[…]
Stronger together PaCC is here to make sure that your experience of SEND services is taken into consideration when our Chair, Vice-chair and Parent Reps attend meetings with the Local Authority, the Clinical Commissioning Group (CCG), SENCO Forums and so on. As we continue to go through challenging times, it means that more than ever, we need to support[…]
Welcome to PaCC’s first round up of the new academic year, and my first as Chair. Also a big welcome to Becky Robinson who has taken over as Vice-Chair. I slip into the very large boots of Fiona England, who stepped down from the role in July. She was a fantastic Chair, with an unstinting commitment to representing the[…]
PaCC Rep Profile Name: Becky Robinson Role Within PaCC: Vice-Chair Parent Carer Experience: I am the proud parent of three children who have a range of neurodiverse conditions. My oldest is 22 and he was diagnosed with combined attention deficit and hyperactivity disorder (ADHD) very recently. He is currently studying Secondary Mathematics PGCE (Postgraduate Certification in Education)[…]
You Said, We Did: rollout of vaccines for Clinically Extremely Vulnerable 12-15 year olds
Latest News Sep 21, 2021
In response to the rollout of Covid vaccinations to a defined group of Clinically Extremely Vulnerable (CEV) 12-15 year olds, Amaze Services Director, Ros Cook, and PaCC Rep Pippa Hodge, were invited to be part of a Brighton & Hove Vaccination Task & Finish Group to oversee the planning/delivery of the vaccinations. Weekly meetings have[…]
We are very excited to announce that the nominations for the PaCC Awards 2021 are now open! The PaCC Awards are a way to say thank you to that special person or organisation who did that little bit extra for your family this year. The past few months have been very challenging for many[…]
Do you receive or are you about to receive Direct Payments in relation to your child’s special educational needs and disability (SEND)? Would you like to find out more about managing Direct Payments, pre-paid cards and Supported Bank Accounts? Join us on Tuesday 28th September, from 11am to 1pm at BMECP Centre, 10A Fleet Street, Brighton BN1 4ZE, when PaCC are hosting a PaCConnect,[…]
Have you thought about joining the Parent Carers Council or do you have friends who may be interested in joining PaCC ? As we continue to go through challenging times, it means that more than ever, we need to support each other. The forum is here to give you a voice on how services are[…]
fiona england, chair of brighton and hove parent carer’s council (pacc) steering group tells us what pacc have been up to over the summer Welcome to the autumn term 2020 PaCC newsletter- what a journey we are on! As a community we have lived the day to day realities of the impact of Austerity on[…]
Celebrating the hard work of PaCC partner groups – Summer holidays and autumn term 2020
Latest News Sep 23, 2020
Since the beginning of lockdown, PaCC steering group reps and colleagues from Amaze met weekly via Zoom to discuss the many issues that families were facing because of Covid restrictions. A regular theme of discussion was the lack of access to open spaces, the lack of leisure opportunities, the lack of PAs and the concerning[…]