We are finally launching a safe space for parent carers who have a disability, health condition or are neurodivergent! In our February Round-Up we mentioned that PaCC was planning to organise a new group, a safe space is for any parent carer who has a disability, health condition, or are neurodivergent – whether that’s suspected,[…]
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Vicky Baynton Williams
I suspect most of you have, like me, been feeling that combination of excitement, nervousness and pressure of getting together more in person over the last couple of months. And on top of that, we have been dealing with the unpredictability of Covid isolation and staff absence, as well as the disease itself. I had[…]
Hidden Children – PaCC 1st surgery session: children on part-time/reduced timetables
Latest News Apr 13, 2022
Hidden Children – PaCC 1st surgery session: children on part-time/reduced timetables Many families are facing the issue of children being put on part-time timetables, also known as reduced timetables. PaCC is aware of this and we are working with the Local Authority to make sure children don’t get penalised and that families are fully involved[…]
School Attendance ‘Deep dive’ Since we last updated our members, PaCC have used feedback gathered from parent carers to respond to two Government consultations. These were linked to Government proposals around school attendance and also behaviour in school and suspension and permanent exclusion guidances. As part of the School Attendance consultation, Brighton & Hove was[…]
a celebration of people and organisations who have helped SEND families in 2022 With the PaCC Awards 2022 we wanted to celebrate and recognise those people and those organisations who went that extra mile to be there for you. Thank you to all of you who sent a PaCC Champion nomination, which were shortlisted by[…]
Name: Pippa Hodge Parent Carer Experience: I have three children; Amber (16), Jasmine (14) and Leo (13). Leo has Trisomy 21 (Down Syndrome) and is also autistic. He is a student at Downs View School. He has severe learning disabilities, and a severe speech & language disorder. He signs a bit, gestures a bit and uses symbol[…]
Why join PaCC? PaCC’s motto is ‘stronger together’, that is, all of us standing together can make a difference for our families and all children. During the past couple of years our motto has become even more meaningful, as so many families have struggled and felt isolated. PaCC is here for you, to give you[…]
Welcome to PaCC’s February Round Up A big focus for PaCC recently has been mental health and wellbeing – more needed than ever with the latest disruptions caused by Omicron. Lots of children have been out of school again, as well as staff absences across services, all of which puts more pressure on our mental[…]
Social Emotional Mental Health or SEMH At PaCC we are fully aware that many families urgently need more support and advice around children who experience Social Emotional and Mental Health (SEMH) issues. We want to make sure that those families’ experiences and needs are heard, and used in our co-production work with local health, education[…]
Quality Assurance Framework and SEND Team Staff Updates For a while now, PaCC have been holding regular meetings with Rhianedd Hughes, Head of the SEN Statutory Service at the Local Authority. The SEN Team co-ordinate the assessment, production and review of education, health and care plans or EHCP. As part of the SEND Strategy with[…]
New Group for Parent Carers who have a Disability or Diversity Through our participation work, parents have expressed that they would be interested in being able to get together with other parents who themselves have a disability or diversity, within their own learning or daily life. Sometimes our own personal lived experiences are helpful[…]
Social Care Provision Priorities PaCC Chair, Diana Boyd and Fiona England (who is now leading on social care for PaCC), met with Alison Mills-Clarke last month to discuss PaCC perspectives on social care provision. Alison started as Interim Head of the 0-24 Specialist Community Disability Service (SCDS) in January, replacing Carl Campbell. She has[…]
Name: Ali Davis Role Within PaCC: PaCC rep Parent Carer Experience: I have three amazing children currently at secondary school or college. My 15 year old son was diagnosed as deaf just before his second birthday. He wears two ‘behind the ear’ hearing aids, and has thrived in mainstream education. He does not have an EHCP (Education[…]
Have you thought about joining PaCC? The forum is here to give you a voice on how services are planned and provided to you and your family. We regularly keep you updated about our work and organise focus groups and surveys when needed. We are here to make sure that your experience of SEND services[…]
It’s been another busy couple of months at PaCC. In this month’s round-up, we introduce PaCC Rep and steering group member Lucy Hughes who has been representing PaCC on the Mental Health Support Teams in Schools (MHSTs) steering group. As well as our usual coffee mornings with Paolo, we hosted two additional engagement events. Our first PaCConnect since the end[…]
Mental Health and wellbeing consultation workshop: a neurodevelopmental lens on Foundations for our Future Parent carers have told us that their children and young people with neurodevelopmental conditions (NDCs) face an extra level of challenge accessing emotional wellbeing and mental health services. In recognition of this, PaCC organised a neurodevelopmental mental health consultation workshop. Over[…]
PaCC Rep Profile Name: Lucy Hughes Role Within PaCC: PaCC Rep Parent Carer Experience: I am a parent carer. Our eldest child was diagnosed with autism spectrum condition (ASC) aged five. He is now ten and is in a mainstream primary school with support and will be joining a mainstream secondary. He has sensory needs and has required the[…]
Planned care – your voice ‘Planned care’ means services for pre-arranged health appointments, usually following referral by a GP. As many of us know, health and medical appointments can be challenging for our children and young people. PaCC has welcomed the opportunity to feed parent carers’ experiences in to a new Sussex wide group called[…]